Friday Down

 

It’s been a while, I know.  This entry is to log that I took a pretty hard hit this afternoon, even after/as I was taking my Potassium Fizzies.

First thing I noticed was that I was staring at a blank computer screen unable to remember why I began looking at it in the first place.  Next, my lips began to go numb and my eyelids no longer were behaving my orders to remain open.  I managed tunnel vision to see the counter (I was sitting at the desk in the dining room) and got myself there before my legs went fully out.  CC pushed me against the counter in an effort to stabilize me and keep me from falling ( think).  She called for Missy to come and help and next thing I knew I was falling into the black chair.

 

I don’t like the attacks that are accompanied with numbness, especially in my lips; it’s a terrifying feeling of awareness that things are not at all right.

I was down for a number of hours and now can only hobble with the use of 2 canes instead of one.

Prayers for a better tomorrow…

peace-

Dancing with Kaiser

  

  

I replied to a friend just today, regarding my last hospital stay and felt I should include the same in here, so, here you go:

Sorry to not have answered the different requests for more info regarding my last dance with Kaiser Roseville...bleh.

To spare you a Pepto moment (or the necessary gouging of one's mind's eye), suffice it to say that sections of my intestines (entire large intestine particularly) became paralyzed and simply shut down (“went to sleep” according to ER docs) so life got to an unbearable state after about 12 – 15 days and I was taken by ambulance to the ER, released 10 hours later with very little progress and then 48 hours later admitted for 6 days while they medicated me while “we” waited for my system to “wake up”/un-paralyze. 48 hours after being released from my 6 day dance, I was back in the ER due to vicious withdrawals from the med they used to “make the pain bearable” and due to stopping another pain med that I’d been on for nearly 4 years…they SUCK at “dancing”, so to speak.

Hard to believe that THAT IS the abbreviated/edited version…

In fact, the blessing of my stay there was that my brother Kevin Kern came down from Sutter, cleared all his appointment-decks and stayed with me for 24 hrs to make sure I was cared for righteously and had an advocate there during some time where CC and my mom were unavailable or just in need of a break.  Make NO mistake; Kevin is a man of his word AND His Word.  :o)  He’s my bro-

Paralysis can take numerous muscular forms and in this case besides my arms, legs, jaw, neck being hit, the muscles surrounding the intestines also took the hit, only they did not respond to the levels of potassium I took to bring my regular motor skills back around and we had no way to know, initially, that what was going on was HKPP related.

*sigh*

…but hey, I’m writing a little music here and there, as I have the strength and desire to be creative, so life could CERTAINLY be worse.

Swing batter, batter, batter…Swing!

:o)

Jesus Christ Is Lord!

Regardless of all the crap I know, the pain I feel and the sleep I lose, THIS, I know in more than just in my language;


イエスキリストは主である!
...is Japanese for "Jesus Christ is Lord!"


ישוע המשיח הוא אלוהים!
...is Hebrew for "Jesus Christ is Lord!"

The translations are literally endless, the further you step from your home, for languages and dialects change from corner to corner and country to country, but no matter where you go, Jesus is STILL Lord and MY Saviour!


Lord God, I ask for your blessings on us this day and your forgiveness of our constant and embarrassing failings while we live and breath, even now.


Amen.

We went back in to the ER this morning due to full body spasms and restlessness; I was unable to sleep last night and tried a variety of locations & position, to no avail.
So, CC took me in and they confirmed her suspicion, that I am experiencing withdrawls from going off of my methadone and from 6 straight days of another narcotic from last week.
We are on our way home now.
I'm exhausted.

Well, I'm on my way

Well, I'm on my way home; Still no success as to why this is happening, though my hunch is that it is HKPP related.
*sigh*

The fam came 2 visit me-

Hotel Kaiser...

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Well, I've been at Kaiser now since Tuesday morning and have begun to get some progress with my system trying to re-set itself in terms of digestion and process. Needless to say, this is not something I'm going to write about in detail, but thr better news is that there IS progress.
Couldn't sleep much last night so I have to be more vigilant in terms of signs of an HKPP hit as a result.
I'm everso gratefull for your prayers and and intercession on my family and my behalf.

There'll be more when I know more-
Peace-

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Currently admitted in Kaiser (after

Currently admitted in Kaiser (after ER) trying 2 get the muscles around my intestins to work right.
Prayers welcomed.

Back From Hell

 

Kind of a dramatic title, but it fits in many ways.  Yesterday, Saturday, started out fairly “normal” for me but by 10:30 or 1100 am, I was in severe pain.  The pain radiated from my lower intestines and was inconsolable; no matter what I did, I could not make it stop.  By noon-ish, CC had called 911 and I was in the ER by 12:30.  I stayed in the ER until 8 or 9.  I’ll not go into detail (you’re welcome) but the bottom line appears to be that the muscles in and around my lower intestines and colon have become intermittent and thus resulting in excruciating pain.  I cannot begin to describe (nor will I) how the day progressed.  My body eventually cooperated a little which gave me some relief, but it was brutal.  CC stayed with me the entire time and was solely responsible for keeping my HKPP at bay during the whole thing.

…next…?

 

Stupid Disease!

*Sent from my email address