I'm home.
This a my blog about my life and struggles with HKPP (a terminal disease); Conquests and set backs, relationships and the strengthened resolve of their survival.
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In This Body: Living with HKPP through Faith and Love of family & community with Wade Odum This was recorded on March 19, 2024 On today&...
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Wednesday, August 08, 2007 I’m back at home on my bed. It hurts to walk and stand and I’m more than tired. No sleep while we stayed at Rosev...
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Thursday, May 03, 2007 Pretty tired. Kind of long day with only one point of light headedness. My productivity was in emailing and research...
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4-23-2018 Well, hello there. Pushing towards 2 years of absence from my own blog...I'm frustrated that I haven't kept this ...
Hi Wade,
ReplyDeleteJust don't like the posting we get these days from you. Our prayers are with you and your family. I tried to contact people at Stanford, trying to find out if anyone is doing any research on this disease, but was not very successful. What is Kaiser Patient Advocacy doing for you?
Please, if you are in bind, we are not that far away and help would be on the way with one phone call, we really mean it!!!!
We love you and hope to see you soon,
Stefanie and Ray