11-11-11
It does appear that the events of the past few weeks have been meandering their way through the different communication lines, and though I was not trying to keep anybody in the dark, I get very uncomfortable (now) perceiving myself as whining or complaining though I realize that it's probably just my perception. Blah blah blah.
Yesterday situation was, that in the late morning my blood pressure begin to spike and refused to come back down. I spent six or seven hours in the ER with CC at my side and a blood pressure averaging 200 – 220/95 – 110, or thereabouts. To clarify, those were the numbers that it would spike into; three different doctors were alternating taking times coming in and trying to discern what would work to not only bring my blood pressure down the keep it down. We ended up having an excellent nurse (which is/was a gift from God) and the final Dr. that I had was excellent, and ended up discharging me with a prescription for a fast acting blood pressure med that we can use should the situation occur again. Unfortunately, I have similar issues on Wednesday but I didn't call 911 and the blood pressure eventually lowered itself into a range that we were less concerned about, but that is why we went ahead and called 911 yesterday and went in, because it was the second day in a row.
As I'm dictating this into the computer, my nephew Erik sits behind me and playing his five string bass and riffing away. Very cool.
The HKPP battles have been fairly rough as of late and then adding the blood pressure issues has really pushed things to the outer limits. Though there's been a ton more pain over the last 10 to 12 weeks, there has also been a definite increase in my songwriting and intensity therein so I guess I'm grateful for both, kind of…
I know that this is an overused phrase, and to be honest, I'm more often annoyed by it than not, but the phrase is “I do not know what the future holds, but I do know Who holds the future.”There was a point yesterday while I was lying on the gurney and staring up at the ceiling, when my perception of life became very simple and uncomplicated. There was a nurse on my right adding a medication into my IV, while my wife was on my left watching the process and holding my hand. Within 15 to 20 seconds of the IV medicine getting into my system, I went into a vicious reaction/hit. I was no longer just laying on the gurney but I was trying my very best to get out of my own skin so that I could escape the spasms and pain. While the nurse was shocked and freaking out at what was happening, CC gently stroked my head and my face, a calming assurance that she was right there with me and that I would be all right, not to worry. I don't know how long the hit lasted. After she got some potassium into me, and I was able to see and speak again, I believe the first words she said to me were “well THAT just kicked your ass!” Yep, it sure did. Even in moments of my own horror, she knows how to make me smile (even if the smile isn't visible). She then told the nurse that that was the last time I will be given that/those meds. Had I been in restraints, I'd have pulled or torn muscles by the lashing my body gave me.
So the bottom line is now that I am back at home and today was a good day of recuperation and I'm looking forward to more of the same through the weekend and getting my strength back.
I doubt that any of you truly know how much your encouragement, prayers and thoughts mean to me and to my family, but all I can do from here at this point in time is tell you “thank you”. Simple but true.
Lastly, I have a bucket of prayer needs/requests for those who want to go there. It’s all good either way.
Peace
w
This a my blog about my life and struggles with HKPP (a terminal disease); Conquests and set backs, relationships and the strengthened resolve of their survival.
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Love to you, brother
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