Wednesday, September 3, 2008
HAPPY BIRTHDAY SIS!!!!!! My sister Mindy's birthday is today (9/3). I wish I could be with you to celebrate. As a matter of fact, yesterday was my sister-in-law, Kimmy's birthday and my good buddy, Ray Baldonade's birthday as well. I, like a royal putz, didn't get off a card to either one. I'll see if I can send a belated E-card tomorrow morning. Everybody deserves a card on their birthday. Everybody.
Well, once again...it's after midnight and I'm just now getting to my blog. Growl.
My last post was this past Saturday, which came and went without a manifested attack, however, Sunday evening contained an attack (nasty) as did Monday late afternoon (also nasty). I figured that I would have been on a walker Monday and yesterday, but my body has been rebounding much quicker than recent past. Come to think of it, the attacks now, as well as the recoveries, are similar to back in the middle of 2006. I hope I don't repeat the rough ones form then too...
I slept for nearly 4.5 hours this afternoon/evening...just kind of passed out. While in a light sleep, I was aware of the myoclonic jerks which were hitting every few minutes, it seemed. I hate those with a passion, but I cannot do anything about them at all.
I've spent much time learning Facebook and getting acquainted there, more than I have been keeping up here. I'm sorry about that. I'll do better. Problem is that, the attacks last for 4+ hours and then I am limited as to how much energy I have to post or even sit at the computer and Facebook is a interactive social on-line network, so there is immediate gratification most of the time, when I log on.
I really want to share Facebook with the folks on the HKPP list, but I'm not sure how to do it without getting kicked off the list. Anyone who's on the list and reads my blog, feel free to check out what Facebook is. It's a very cool way to socialize even when you are feeling imprisoned by your house and disability. It's been a real blessing to me so far.
I will try to recall the past few days activities to get them noted on here, maybe tomorrow. My memory problem has hit very close to home today; I could not remember my cell phone number. I know that may seem trivial, but that's something I've never forgotten but today...well...I was stuck when I was asked for it. This whole disease thing terrifies me at different points in time. I cannot describe my fears as I realize I'm losing my memory of people, places and things...I've always been proud of my ability to remember and memorize, so it's incredibly hard to see it go away so slowly.
Ok. It's 12:58 am and I'm officially tired.
Done. Pray for no attacks tomorrow.
Oh yeah; here is my Facebook page:
http://www.facebook.com/profile.php?id=1456926742
-peace
This a my blog about my life and struggles with HKPP (a terminal disease); Conquests and set backs, relationships and the strengthened resolve of their survival.
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