Greetings all-
This is a quick post to ask those reading this to follow the link provided and cast a vote for "Rare Diseases". There are currently 3 days left to account for any votes, so whatever can be done in this period of time will prove differential. I read today that "Rare Diseases" is currently in sixth place on the list, and if it moves down the list, then financial resources may not be made available for future research and studies.
If you've ever wondered how you might be able to positively impact my life, even though we may not be near each other, I think this is one way that could be very helpful.
There are currently 2,732 votes.
The site asks for your name and an email address and to create a password; that's it. They will email you a confirmation link and register your vote.
Again, the link is:
http://www.change.org/ideas/view/25_million_it_is_time_to_care_about_rare_disease
Thanks for considering it-
peace-
w
Tuesday, March 09, 2010
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Just voted. I have HKPP as well...it has been a very rocky road. Thanks for getting the word out about this disease. God bless ~Kelli
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