Tuesday, July 28, 2009

Nothing Witty at the Moment…

 

 

Sorry it’s been a while…again.  Another crash today; that makes 3 crashes in 4 days.  All of them, as far as we can discern, are due to the heat and my exposure to it.  That sucks.  And it sucks more-so because, for the foreseeable future, the temps are going to be in the mid-90’s or low 100’s.  There are definitely points where I wonder if we should just go to the ER in hopes of some sort of physiological re-set of my system, but it seems that every ER visit is an actual battle just to get proper care and I certainly CANNOT go in without someone with me as my advocate there and then, otherwise I would be triggered into an even larger attack, we’re certain.

Today’s attack came while at Joshua’s “Summer Olympics” at his gymnastics center.  Praise God that I was with CC and Missy, along with Aunt Judy, Uncle Norman and my cousin Chris, all who came to support Joshua and be there to see him.  I remember the whole time while there and was able to see him take the small stand and receive his medal.  I could not have been more proud and was humbled that the Clark’s wanted to be there and were able to make it work.  I know that my parents and my sister’s family would have come up too, if they could have made it work, but it wasn’t feasible and we all understood that, including Joshua.

I still have the Monterey pics to post up, which I will likely post here as well as Facebook, though that is twice the work.  If I can figure out a way for you-all to see the pics on my Facebook page then I will just post them once and link it here in the blog.

Well, that will have to be it for now.  More to come…

peace-

Wednesday, July 22, 2009

Monterey Blessing...

This is a pic of Sierra (Ash) and me in Monterey. My heart was filled and greatly blessed by the opportunity to see her and her daddy, Sam Harman.
:o)

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Sunday, July 19, 2009

14 years in the making..Sam & Wade

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Saturday, July 18, 2009

We are at Rio Del Mar Beach for the afternoon!!

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Friday, July 17, 2009

Can you guess what was for dinner...?

We ate dinner at the Fish Hopper in Monterey and not only did CC and I get Filet Mignon AND lobster (we both ate for $20 each), but they prepared EVERYTHING for me with no salt! Absolutely fantastic!
After spending the entire day at the aquarium (from 11:00 am till 6:00 pm), we ate a wonderful meal sitting by a bay window overlooking the Bay itself and watching otters and seals playing.
God has blessed this day.
Now, we go back to our motel room with the 4 person jacuzzi in it!! I can do this.

:o)

Scuba Joshua!

Joshy scubas in Monterey!!

Joshy goes scuba diving!!

Sorry this is sideways (as are a few more); when I get back home, I will orient them correctly. :o)

Lunch in the Aquarium Cafe'...

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Thursday, July 16, 2009

the tat...

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Missy getting an air brush tattoo...

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More Boardwalk...!
Oh yeah...and a WONDERFUL 71 degrees!!

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...at the Boardwalk in Santa Cruz!

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Our 1st day in Monterey in several years and having breakfast at "Grandma's"; our last time here was 14 years ago. Too cool.
We are excited.

Last night's ride to the Bay Area came with a cost but it was paid and we kept on going and arrived after a total of 6 hours driving.

Time to eat!
peace-

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Wednesday, July 15, 2009

We are driving down 101-South

We are driving down 101-South through San Jose...a couple of hours from my favorite location in CA: Monterey.

Friday, July 10, 2009

Friday Night Now

 

As of right now, 9:16 PM on Friday night, I'm working on relaxing at the end of a fairly tiring day, yet not a bad day. The highlight of today was taking any for a walk over at the park that's close by our house. Missy had a friend sleepover last night so the two girls along with Josh and my parents and I all went over to the park, along with Annie. I took any for two loops around the entire park while the kids rode bikes in the scooter and explored the park in the creek that runs through it. A landmark for today is that my dad wrote my bike over to the park and that the first time he has been on a bike in over 20 years, according to him; that we'll see how he feels tomorrow...
the temperatures were in the low 80's and I had plenty of water with me, so all in all I think everything went very well. I ran my chair until it had barely any battery life left and was able to ride home with it as well.

No attacks today and no crashes; after being out for as long as we were at the park, I thought it was quite possible that there might be a crash or a hit that would take place simply due to my being in the sun and the heat and being "on", but I am blessed to say that nothing negative transpired (other than a lady walking to small to medium size dog's who did not keep them on a short leash when they passed by me and Annie; one of the dogs continued to bark but did not come close to her while the other dog lunged at her four or five times without the owner doing much about keeping it away from any. At one point I was able to reach past Annie with my left arm and knock the dog about 4 or 5 feet away; and the lady kept walking, never said sorry, never apologized, nothing. Space space here I am protecting 100 pound dog from two 20 or 30 pound dogs, when in fact I'm actually protecting the two dogs, in reality. I'm pretty sure if I had let Annie go or if I had given any any length of leash at all she would've made short work of the two obnoxious pets.)

Well, I've been writing for about 30 minutes now and I'm tired. More later --

peace

Wednesday, July 08, 2009

Can't sleep

So it's 2:37 in the morning Wednesday morning and I woke up from a very light sleep about 45 minutes ago and I'm waiting for some of the medicine that helps me sleep, to take effect. It seems, over the last two or three weeks that my body sweats have been very pronounced during the night and morning while in bed. At first I thought that had directly to do with what I was eating just before going to bed but there were a number of nights where I didn't have anything to eat just before going to bed than the food that I had had which had been consumed four or five hours prior to going to bed, so I guess that means I have no idea, yet again, as to what the hell's going on with my body. I would much rather be in bed dreaming and resting right now than sitting here at the computer typing. Praise God for Greg Kopchinsky and his gift of dictation software to me, for with out it at this specific time, I wouldn't be able to be typing or focusing my thoughts in such a way as to be able to type.

I did have a crash this afternoon, actually this evening. Just as dinner was starting, I could tell that things were slowly headed south (as opposed to quickly), so I poured some potassium and drank that and went ahead and had dinner with my parents and family and Sean O'Brien who had come and was visiting for a good part of the day. By the end of dinner it was difficult for me to focus and so Joshy helped me walk into the house (we were eating outside). Shortly thereafter, I was in my chair and could feel all of my strength and my energy and ability to focus, ebbing away; it is in some ways, surreal to experience some of these attacks; I know they must look completely different to the person standing by and watching it. So far to date, I'm too embarrassed or vain to want to video record what I look like when the attacks happened, though I know that it could quite possibly be a very effective tool once we find a doctor who will take me on and take an interest in seeing my disease managed in a more efficient manner than just living day to day, waiting for the hits to come; in some cases literally counting the minutes before all hell would break loose.

Yesterday morning, Tuesday, I slept in fairly late but was able to get up in time to go to my 10:30 physical therapy appointment in Antelope. Things went well during the appointment, although I chose not to do any of the weights or exercises just because I wasn't feeling confident on how the rest of the day would turn out to be. Following physical therapy, my mom dropped me off at home and she left to pick up Missy from school and my dad and I got out my rifle and shotgun in prepare them for taking to the gun range in Rancho Cordova. My friend Sean O'Brien came over and he, along with my son Josh, went with us. We stayed at the range and shot for couple hours with my rifle and another .22 rifle we rented there at the range and had a pretty good time, all in all. The only exception that took place with me was that a person standing two booths to my left, shooting a higher caliber rifle, whose ejecting shells from his rifle were kicking out of the gun at a fairly good speed, (most of the time landing on top of Sean's head or my platform, or even further down away from us) came towards the end of our shooting time when the gentleman shot the target and the ejected shell flew directly towards my face and lodged its very hot metal casing in between the skin of my left eye and my glasses, so it held there for a moment until I could yank my glasses off and get the shell casing off of me. After doing so, we took a look at it and I have a couple small burns and bruises where it landed but I'm so, so very grateful that it did not actually hit my eye which was just a quarter of an inch away. That was a little scary and it definitely was a lesson as well, in that, when I go shooting the next time I will make sure that I have large piece of cardboard on my left to prevent any shells from popping over from one booth to the other.

It is now 3:08 AM and I'm going to try it back to sleep.
Today's crash is the first in the past five days, so in and of itself, that is good news according to my daily life.

Monday, July 06, 2009

It’s Been a While…

Where to begin? It’s been so long since I last posted. It kind of snowballs on itself, in that I feel frustrated and bad that I haven’t written and caught up here that I put it off, waiting in some sense to have more information to write and share, but the reality is that I should be just journaling daily and that would solve the issue. Of course, now that I think more about it and remember how I have been over the last couple weeks, I realize that I’ve had numerous hits/attacks that have interrupted all daily flow and plans, and I need to keep that in mind before I continue to rag on myself for my blogging absence. Same old, same old, I suppose.

Well, it's taken a long while for me to be able to get the new speech recognition software "Dragon NaturallySpeaking 10" installed onto this computer, because I was unfamiliar with the sound card layout of this computer; none of the plug-in locations on the sound card have any labels so it was a matter of trial and error to find out which one was the microphone input. Success. Of course, by using the recognition software, I'm likely to be much more verbose than I would be if I were just to be typing... :-)

My parents have come to visit for this week; they were in Oregon all of last week visiting a very dear friend of theirs who was celebrating her 97th birthday. On their way home to the Bay Area, they decided to come by our house and hang with us for the week. I expect that this week will be a pretty mellow week because we have no major things planned and no major accomplishments to be reached. Cc garden is doing really very well in the backyard; she planted corn, watermelon, tomatoes, squash, and pumpkins and all are growing just fine. It's the first time she's ever had a garden of any substantial nature, so she's very excited about this end we are all excited to see everything growing, to see the "fruits of our labor", so to speak. I need to post some pictures of our little garden... maybe I can get that done in my next post.

As for me and my health, over the last week or so, it seems that I've been getting between one and two days in between attacks which is better than no days in between attacks, but I sure would like to have more time than that in between the hits. Most of the time, were able to discern what the triggers have been for the attacks, but not in every case.

It’s 10:35 and I’m going to get this one posted and then see about another more complete one tomorrow.

Peace-

In This Body: Living with HKPP through Faith and Love of family & community with Wade Odum This was recorded on March 19, 2024 On today&...