Wednesday, July 08, 2009

Can't sleep

So it's 2:37 in the morning Wednesday morning and I woke up from a very light sleep about 45 minutes ago and I'm waiting for some of the medicine that helps me sleep, to take effect. It seems, over the last two or three weeks that my body sweats have been very pronounced during the night and morning while in bed. At first I thought that had directly to do with what I was eating just before going to bed but there were a number of nights where I didn't have anything to eat just before going to bed than the food that I had had which had been consumed four or five hours prior to going to bed, so I guess that means I have no idea, yet again, as to what the hell's going on with my body. I would much rather be in bed dreaming and resting right now than sitting here at the computer typing. Praise God for Greg Kopchinsky and his gift of dictation software to me, for with out it at this specific time, I wouldn't be able to be typing or focusing my thoughts in such a way as to be able to type.

I did have a crash this afternoon, actually this evening. Just as dinner was starting, I could tell that things were slowly headed south (as opposed to quickly), so I poured some potassium and drank that and went ahead and had dinner with my parents and family and Sean O'Brien who had come and was visiting for a good part of the day. By the end of dinner it was difficult for me to focus and so Joshy helped me walk into the house (we were eating outside). Shortly thereafter, I was in my chair and could feel all of my strength and my energy and ability to focus, ebbing away; it is in some ways, surreal to experience some of these attacks; I know they must look completely different to the person standing by and watching it. So far to date, I'm too embarrassed or vain to want to video record what I look like when the attacks happened, though I know that it could quite possibly be a very effective tool once we find a doctor who will take me on and take an interest in seeing my disease managed in a more efficient manner than just living day to day, waiting for the hits to come; in some cases literally counting the minutes before all hell would break loose.

Yesterday morning, Tuesday, I slept in fairly late but was able to get up in time to go to my 10:30 physical therapy appointment in Antelope. Things went well during the appointment, although I chose not to do any of the weights or exercises just because I wasn't feeling confident on how the rest of the day would turn out to be. Following physical therapy, my mom dropped me off at home and she left to pick up Missy from school and my dad and I got out my rifle and shotgun in prepare them for taking to the gun range in Rancho Cordova. My friend Sean O'Brien came over and he, along with my son Josh, went with us. We stayed at the range and shot for couple hours with my rifle and another .22 rifle we rented there at the range and had a pretty good time, all in all. The only exception that took place with me was that a person standing two booths to my left, shooting a higher caliber rifle, whose ejecting shells from his rifle were kicking out of the gun at a fairly good speed, (most of the time landing on top of Sean's head or my platform, or even further down away from us) came towards the end of our shooting time when the gentleman shot the target and the ejected shell flew directly towards my face and lodged its very hot metal casing in between the skin of my left eye and my glasses, so it held there for a moment until I could yank my glasses off and get the shell casing off of me. After doing so, we took a look at it and I have a couple small burns and bruises where it landed but I'm so, so very grateful that it did not actually hit my eye which was just a quarter of an inch away. That was a little scary and it definitely was a lesson as well, in that, when I go shooting the next time I will make sure that I have large piece of cardboard on my left to prevent any shells from popping over from one booth to the other.

It is now 3:08 AM and I'm going to try it back to sleep.
Today's crash is the first in the past five days, so in and of itself, that is good news according to my daily life.

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