This a my blog about my life and struggles with HKPP (a terminal disease); Conquests and set backs, relationships and the strengthened resolve of their survival.
Tuesday, April 21, 2015
Greetings Again 2015-04-21
On Sunday, April 12, CC and I were in the Bay Area at my folk's house (came in for Saturday and Sunday) and Sunday morning I awoke with abdominal cramps that seemed to get more intense as the morning wore on. This has happened before due to HKPP, but I was not expecting HKPP to be a factor. Longer story short, we had to leave my parent's earlier than planned because it became clear that a Hit was in progress and we wanted to be back home to deal with it. This Hit was the most severe I've had in many months and lasted roughly 5 hours, including difficulty breathing and swallowing, two things I have come to NOT take for granted. Because of these parameters, fear was also complicating matters for me as well and made for a very stressful drive back for CC. I didn't fully recover until the following Friday.
Then, on Saturday, April 18 (the day after finally recovering), we went to Old Town Sac with some family from out of town, and walked quite a bit and we were in the sun/heat. After returning home, I went upstairs to lay down due to abdominal cramps again (and over-all nausea and fatigue). Missy wasn't home yet and CC and Josh took the puppies to a dog park for a brief stint, so, bottom line, I was home alone. After laying down and watching some TV, I began to get confused on what I was watching, what time it was and who was home, etc, then realised I couldn't get out of bed and then I knew what was happening...again. This was much more of a Crash than a Hit, though breathing became difficult again. CC and Josh came home sometime during the onset, though I'd had enough time to panic that I was alone while this was transpiring. I was able to walk unassisted again by Sunday night.
We treated both attacks with O2 and CRASH mixtures (16oz of water combined with 3 tabs of Effer-K, Magnesium Taurate and Vitamin C ). What I eventually remembered is that sometimes the abdominal cramps are due to paralysis of the abdominal muscles, which is where the paralysis started both of these times. I know this because of the centralized, localized sustaining weakness that remains even after the Hit or Crash takes place.
I'm still dealing with quite a bit of fatigue and lack of strength as a result, but life keeps moving forward and so will I, one way or another.
Friday, December 19, 2014
Merry Christmas 2014
Sorry that the audio just cuts out at the end... it's prefabbed.
We wish you blessings-
Wade & CC, Missy & Josh (and Annie too)
Friday, September 26, 2014
Bigger hit on 9-25-2014
CC got me to the car before I couldn't walk anymore.
Tongue got numb and caused breathing and swallowing/choking issues.
It's an "everything hurts" day again. Been a long time since one of these.
HKPP truly & completely sucks.
Wednesday, August 27, 2014
Small Steps
w
Monday, August 25, 2014
The Good with the Bad
Today feels familiar...not pleasantly so, but familiar.
Pain ranges from 4.5 to 7 or 8 on a 10 scale, depending on what I do physically..
Please be praying for a very rapid recovery and constitutional stability. I've been through this many, many times before now. Please also pray against the enemy's mind games and the depression that accompanies these experiences.
Thanks to all who are reading this-
peace, blessings-
w
Monday, July 07, 2014
Happy 4th of July!! (a couple days/years late...)
For those who follow this blog and have connected to me/it over time, I'm sorry to have not posted for so long. All I can do is ask your forgiveness and to bear with me, checking back from time to time or even setting it up so that, when I post to the blog, you can get a email note of the activity, if you choose to.
Okay....How to start up again...?
2014-07-07
God is good, ALL THE TIME, God is good. I may lose sight of the electrical joy that comes with knowing that very thing, but His mercy on me holds the spiritual charge that I need every day of every week, and when I am willing and able to see His recharging of me, I can see the power and feel His electricity as He charges me for another unearned day (on my part).
This past February 5th, marks the second year since my stroke and divine recovery. It still causes me to stop and catch my breath when I think about what has happened in my family, and in me, in the past 8+ years.
Back in 2001-2002, I had the opportunity, honor and the blessing of meeting a young poet/musician evangelist by the name of eLi. How we met and why we met is for another day, but for the purposes of this blog entry, I want to share how God touched me through eLi.
He played and sang a song that struck me to my center core, as if I was the only one in the room those nights I heard him sing. Here's the song: "Unqualified"
The lyrics are:
Verse 1
Every night I stand before you
And please know that I'm so glad you came
Who am I that you should treat me like a hero?
I am no Superman but just another face
Verse 2
If I had it to do over
I can't say I wouldn't do the same
Cuz thru it all I've learned about my God's forgiveness
Well I rejoice cuz I can turn to Him and say
Chorus
I have stolen, cheated, I have lied
I am prideful and unqualified
I am broken when I realize
It's God's grace, God's grace
That covers (me)
Here's eLi sayin' it straight...(below)
This song has never left my soul or spirit since hearing it the first time in the small balcony in a little church in the Bay Area, where he was performing for a gathered crowd of 20+ people or so...
Anyway, his song reminds me of who I am and brings me perspective when things are both very hard and also very good. I've lost contact with him over these past several years, but he is always in my heart and prayers and I am forever grateful for his humility and honesty and his friendship of me, another unqualified, broken vessel who doesn't want to be out of the sight of his Potter, Giver of Life.
That was not where I was imagining this post was going to go...but it is where it should be in this moment, at this time. I hope the link comes through above; if not I will go back into the post and fix it somehow.
If you'd like to reach me or reconnect, my email is: audiopilotfopc-at-gmail_dot_com
Peace and blessing to all who read this, and if you don't mind to, just tag a comment that you saw and read it so I know who's still out there? There's much more to share and I'd like to get a sense of who I'm sharing with at this point. :o)
Blessings, Love and Music from Wade (Audio Pilot)
Thursday, September 26, 2013
Prayer request
Wednesday, June 26, 2013
Thursday, May 23, 2013
2013-05-23
Here it is on Thursday, May 23, 2013 and my daughter graduates high school tonight…I’m still reeling from this fact…proud, very proud, but in constant state of adjustment.
Last week was monumental for me; I volunteered for the Casa Senior boards (8 hours both Tuesday and Wednesday) and was without my chair and the need for my cane. :o) Then on Thursday, I was with Jayden (I mentored him for learning guitar for his 8th grade board or ISP) while he presented his song he learned and then went 2 classrooms down and was with Joshua while he had Annie present to show what he had learned for dog training during his ISP. All of this without need of my chair and cane (for the most part) and then came Friday which was the 7-8th grade final dance and I chaperoned for the evening.
Missy’s Senior Ball was the following night, but I didn’t get to go… :o) She, Eli, Winter and Jacie looked amazing; Eli flew in from Colorado that morning to be there with her, very classy.
Sunday was recovery day but each day had been good.
Monday afternoon and evening came with a hit, the first in almost 2 months+. Worthy of noting is that the hit came as a result of my losing my balance and falling, hitting my head. Missy and Eli helped me up and I walked to my bedroom on my own power but the spasms began shortly afterward and the “ride” was on for I don’t know how long. Tuesday was a recovery day and Wednesday was back to feeling 75%.
I’ve been working on walking between 2 and 5 miles a day without assistance and I cannot begin to express how incredible that feels.
Time to make sure Joshua is ready to go to school…
peace
w
In This Body: Living with HKPP through Faith and Love of family & community with Wade Odum This was recorded on March 19, 2024 On today...

-
Wednesday, August 08, 2007 I’m back at home on my bed. It hurts to walk and stand and I’m more than tired. No sleep while we stayed at Rosev...
-
This is a pic of Sierra (Ash) and me in Monterey. My heart was filled and greatly blessed by the opportunity to see her and her daddy, Sam ...
-
Sunday, February 17, 2008 No hospital stays or ER visits, of which I'm blessed to avoid. Bouts of weakness, near fainting spells, comple...