Wednesday, April 29, 2009

Another brief one.

 

Wednesday Night

 

No attacks today and my diet was pretty good until dinner-ish time…

Breakfast was a bowl of mixed yogurt

Lunch was 3 scrambled eggs with mild cheddar cheese and two pieces of toast with butter and some blackberry spread

Early dinner was a packet of steamed rice and about a ¾ cup of last night’s Orange Chicken (that I did not have any of then…)

-       After this meal (about 10 minutes or so), I felt very tired and my soreness and muscle pain increased 3-fold, at least.  Sweats also came into the picture about 30 minutes after eating.

Protien Dinner was a grilled burger with some powdered garlic and a teaspoon of worcestershire sauce, both mixed into the meat before grilling.

Dessert was ½ a candy bar (20mg of carbs)

Snack of single serving (in grams) Cheetos puffs (300mg sodium)

5 bottles of water throughout the day

 

My legs felt very good today (until the Orange Chicken) which I believe is a DIRECT result of PT yesterday.  I did have some pretty heavy sweats today as well, but not in relation to my foods; simple, straightforward potassium flush (system dump).

 

Blood presure is still higher than it should be and my blood sugars were better now that we have doubled my Glypizide, but they were still high as well.  *sigh*

 

That’s it for now, time to get in bed-

 

 

 

 

 

 

 

 

 

Tuesday, April 28, 2009

Tuesday Morning and Day Incomplete *sigh*

  

Yesterday’s attack left its mark, in that my leg muscles are pretty sore and my ribs and chest are also fairly sore too.  This has become the  status quo for the past couple weeks now and is strongly reminiscent of 2006 – 2007; I’d REALLY rather not feel this poorly after attacks.

I was feeling alright for the morning (all things considered) but had a couple bouts of heavy sweats during the AM hours, which brought with them some concern.

[listening to some classic Kiss (“Detroit Rock City”) and Damn Yankees for some energetic motivation]

10:04 AM: It’s almost time to head to PT, so I will continue after I return…

…Well, it’s now 3:55 PM and PT went fine, though Mark noted that my muscles were in the “solid 7” range as far as tightness and pain (out of 10, with 1 being relaxed and stretched and 10 being the complete opposite) and I did not do any cardio, exercises or weight lifting.  :o(  *sigh*  I would not have made it through had I tried, and I knew it.

I went with CC to pick up the kids from school and it was nice to get out again and have some one on one time with CC, even if it was for a short time.

Since coming home, I’ve had one major bout of sweating, but nothing came from it.  My system is apparently very volatile and fragile at this point, but I’m not sure why.  It’s been this way almost this whole month of April.  Grrr.  I’ve been unable to keep my focus on point.

[OOTB (Out of the Blue…): I didn’t know that Tommy Shaw (of Styx) and Jack Blades (of Night Ranger) formed Shaw Blades after Damn Yankees.  And I thusly did not know that they made an album of cover songs…which sounds great!]

I’ve gotten lost in the music…it’s now 5:43 PM…but that’s a welcome break for me; most often, my best times of repair are while listening and or watching music performed.  Speaking of music, one of the things that this disease has cost me is my singing voice, at least for now.  I can barely keep a head tone going when listening to songs I know and I can’t really put any melodies to the tunes I write, which often leaves me unsatisfied when I’m trying to write something musically.  How many of us ever really think of what we might lose until we have lost it?  I never thought my vocal chords would be subjected to something like this, but muscles are muscles and they take a huge variety of forms throughout our bodies…just mine malfunction due to cellular malfunctions.

My niece Kirsten has come home from her extended trip to Africa!!!  I feel SO MUCH better now that she is back home.  Yay!

Closing out now, maybe more before I call it a night…

peace

Monday, April 27, 2009

Still Brief…

 

Another attack today around 2:30 – 2:40 this afternoon, only no one was home with me or near-bye a phone at the time.  My mind flooded with panic thoughts and “what if” thoughts, but I focused on what I believed would be the logical process and outcome if I chose to stay quiet and calm, not panic and wait for CC to come home.

I’m pretty certain that it was brought on by a combination of stress and sodium; I had a cheese & chicken quesadilla on corn tortillas and some non-salted corn tortilla chips with sour cream and a table spoon of Pace Salsa.  I think that I need to avoid the Pace regardless of counting my numbers or not.

Though she is okay, Missy fell and hit her head this afternoon while at school, knocking her out temporarily, so CC picked her up from school and took her to the ER for the usual head trauma tests.  That was why I was stressed (feeling helpless and worried) and the combo, I think, proved toxic for me.  *sigh*  I hate being broken.

More tomorrow.  Peace.

"Noah's Blog" - This Must be Shared



Ok, I was reading
Vern Sanders MME this morning and it contained a link to the following. I will include the link at the bottom of it again so you can source the original. I DID NOT WRITE THIS, but I do want to share it with you, so you can either read it below or click here to go to the original site and read it there. This is great!!

Noah's Blog


Day 1
Rain.

Day 2
Rain.

Day 3
Rain.

Day 4
Rain.

Day 5
Rain.

Day 6
So I was loading up the last of the animals last week when I walk past my neighbor Roger, the Molech-worshipper. He looks up and says "Hey, looks like rain."

True story.

Day 7
Now wondering if it was wrong to have borrowed Roger’s hedge clippers.

Day 15
It’s been the same every day for the last two weeks, but then last night, our mama elephant gave birth. I’ll put up some pics soon.

Day 16
Baby Elephant
Just look at this little guy. We need to name him something. Anybody have an idea?

Day 18
Note to self: next time I’m on a long cruise and I want to play badminton and I only have one birdie, play below deck. I’m so stupid.

Day 20
I hesitate to write this down, but here goes. . . .

I was working late last night when I felt something bite the back of my neck. Without thinking, I slapped it. Long story short, the new world might have to do without the zhingi-zhingi fly.

Day 25
New Year’s Day. A few resolutions for this year:

- Lose weight (let’s face it, I’m not 300 years old anymore)

- Work out more

- Read the entire Bible (there’s only four chapters in the whole thing, you think I would have done this one already)

-After we land, once a week: date night with the missus.

Day 27
Not to diss my great-great-great-great-great-great-great-great grandfather, but I’ve been hanging out with animals a lot, too, and I think I would have named some of them differently…

ADAM’S NAME - MY VERSION
Rabbit - Hoppity-hoppity

Dog - Rowrf

Bat - EEEEEEEEEE!!!

Duck - Waddle-waddle-flap-flap

Day 31
You guys read this blog. You know I love my wife, right? But I swear, sometimes she just gets on my nerves.

"The roof is leaking, Noah."

"Noah, the sheep are soaking wet because the roof is leaking."

You know what? Sometimes Noah just needs a little Noah Time, okay?

Day 35
Here’s an item from the "you-learn-something-every-day" category: Hippo lovemaking is very, very noisy. Haven’t slept in five days.

P.S. I counted every knot in the cypress wood of the ship: 12,946.

Day 39
Uno Cards
Somehow Ham keeps winning at UNO. Does he have a secret stash of Draw 4’s?

Correction: Earlier I wrote that the wood of our ship has 12,946 knots. However, I forgot to include the cover on the top deck. I included that, then recounted the entire thing three more times, just to be sure.

We have 14,598 knots.

Day 45
Okay, so when God said he would make it rain forty days and forty nights, I assumed that we would be done after that. Apparently I was wrong.

Day 87
Very, very wrong.

Day 110
The wife says I’m getting paranoid, but I believe the primates are conspiring to mutiny. Can’t talk, more later.

Day 150
We’ve landed on top of some kind of mountain. More later.

Day 190
Sent out a dove, but it came back.

Day 197
Noah Dove
This time, the dove came back with an olive branch. Going now to ask the wife if she has any recipes with doves and olives.

Day 204
Sent the dove out again today to bring back some more olives for dinner, but it didn’t come back. So good news is we may be off the boat and onto dry land soon. Bad news: Mrs. Noah’s Greek Dove Souffle is a no-go.

Day 231
So we’re on land now. Yay! Big thanks to everybody who wrote to check on us. BTW, my new e-mail address is noah@mtararat.com. I’ll still post from time to time, to keep you guys up to date. To answer a question that so many of you have asked, no, I don’t have a MySpace page yet.

Man, I could really use a drink.

Cush’s Essay
Here’s something my grandson Cush wrote for a school assignment. . . .

MY DAD
by Cush, age 7

My dad, his first name is Ham, was on a big boat one time. They floated around for more than a year. That’s a long time!! They said when they got off the boat, the ground was really squishy. YUCK! We still have the boat and I play in it sometimes and have lots of fun.

The eNd.

Noah’s Favorite Drinks

Drowned Unicorn
Cranberry juice 1 pim
Orange juice 1 pim
Strawberry schnapps 1 pim
Vodka 1 pim

Add the vodka and strawberry schnapps to a highball glass filled with ice cubes. Use equal parts of cranberry and orange juice to fill the glass. Serve with a straw.

Mt. Ararat Iced Tea
Tequila 1 shekel
Vodka 1 shekel
Gin 1 shekel
Triple sec 1 shekel
Coke 1 shekel
Rum 1 shekel

Mix ingredients together over ice in a glass.

Rainbow Shooter
Creme De Noya 1 pim
Midori 1 pim
White Creme De Cacao 1 pim

Pour into shot glass in said order

Ark Mania!
Everybody’s been writing me, asking for blueprints. Honestly, I didn’t have any. If you’ve read the story, you know everything about building an ark that I do. I will say this: don’t skimp on the pitch. Seriously.

Thanks to everyone who’s been sending in pics of the arks they’ve built (see below). Keep ‘em coming!

NOAH

Because of Noah’s righteousness, God chose him to be part of an incredible adventure. You can read more about him in Genesis, chapters 5-9.

MATTHEW PORTER
Answering a vague--and badly misspelled--post on craigslist, Matthew became a part of making Noah’s story into the blog you’re reading now.



http://www.wittenburgdoor.com/noahs-blog

Early Monday Morning

 

Here it is again, early morning hours and I'm typing while my eyes begin to burn and demand I stop writing and go to sleep. *sigh*

 

No attack today, but a very stiff, hard price for the attack yesterday afternoon.  Had it been much of an option, I would have remained in bed for the day, purely from a ease of pain standpoint, however, it would not have been the right thing to do, not today anyway.

 

It’s 1:30 AM and the main thing from a medical perspective, is to share that I did not suffer an atack today and I am blessed by this sparing.

 

I’m hoping to post some more tomorrow to share the weekend and its affects on us and even share on a show that CC and I watch, “The Celebrity Apprentice” and a show that I don’t watch but whose story lines I tend to follow, occasionally weekly.

 

More to come…

Saturday, April 25, 2009

Brief

Another hit this afternoon and have been down since. Not really sure what triggered it. Happened again while in my office, working on the computer...

More to share of today and yesterday, just not right now; it's 11:13 pm and I'm eating some quick sustenence and going back to bed.

Joshy on the Rope

Joshy Gymnastics

Joshua's Gymnastics

Thursday, April 23, 2009

Thursday

Just a quick catch up to say that there have been no hits since Monday and that late this afternoon is my appointment at the Dentist office. This is normally an anxious event for me, but I'm hopeful that today will be less-so.

Also, please share an email with me regarding this new look of the blog and if you like it as far as comfort reading and navigation and such. I'm pretty interested in your opinion and would really like to hear back about this template as opposed to the previous one. Email me at V12pilot@surewest.net

Looking forward to hearing back from you (it'll only take a sec...) :o)

peace

Tuesday, April 21, 2009

Yet Another Tuesday...

So far today, no attacks or hits but a couple heavy sweats which keep me staying alert for any other signs.  Typically, when I suffer the sweats, an attack of one degree or another will take form and knock me down, so we'll see how the rest of the day goes.

I went to see my primary doctor this morning and saw him this afternoon...we were there by 10:30 AM for my 10:40 AM appointment and then waited a little over an hour and a half before he came into my room at 12:15 PM, approximately.  Even with the frustration of having to wait that long, no attack manifested and I got in and out without an attack.  I still, after all this time, get upset at myself for having to ride in one of their "shopping-cart-wheelchairs" they provide (they have no cushions or padding and it feels like you are sitting on an overturned shopping cart), but without them or my motorized chair, I would not be able to walk that long of a distance and back to the car, and I know it.  Some days are better than others, in terms of my life's independencies, but I tend to struggle more when I have to be carried and am unable to carry myself independently of others.  It's just self esteem issues that come and go, depending on the day.  *sigh*

I need to put together another daily eating/nutrition/BP (blood-pressure)/ BS(blood-sugar) chart which will track my daily comings and goings in terms of foods, snacks, blood pressure, blood sugars and attack symptoms for at least 2 to 4 weeks or longer.

Ok, well so, there was another mild sweat and heavy exhaustion hit which made me just lean my head back onto the back of the chair so my head wouldn't fall forward while I waited to be able to lift my head again and type.  As much as I still hate the fact that I'm not allowed to drive any longer, it is the wise thing because these symptoms give no warning whatsoever and once they present, I have no choice but to wait until they finish.  Grrr...just happened again, only this time my fingers were still on the keyboard and when I'm able to look back at the screen, I see that one finger had been holding down the "enter" key and this had scrolled a stupid amount of pages.  RAR!!!  I didn't lose any info or delete anything I wanted or typed, but it's that feeling, granted simple and small, that I did something I didn't intend to do.

Missy has a track meet today, even right now, but the high school hosting it has no shade in or around their football field and track, so I can't go because of the heat and no possible shade; that SUCKS, in my quiet, yet bashful demeanor...

I ordered a few Styx DVDs that were available used for a very good price; "Styx: Return to Paradise" which captures their reunion tour, back in the mid-to-late 90's and is quite good.  Also, "Styx: Caught in the Act" which is from the 80's during their Paradise Theater tour and I watched most of that yesterday while recovering from the hit in the afternoon.  "Caught in the Act" showcases them in their youthful prime and I think was their best selling tour to date; lots of energy on stage and passion in their work, though some parts were more staged than spontaneous.  But I'm a Styx fan and have always been a Styx fan, so these videos help me escape a few hours at a time when I am unable to physically escape the house or my circumstances.  I cannot remember the name of the third video, which has not arrived yet, but I trust I will enjoy it as much as I have these.

Yet another rest from typing...I guess I will stop and recline in the LazyB for a while and wait this out.

Monday, April 20, 2009

Monday Night

Well, I made it through about half of the service yesterday before I realized I was in a battle to keep control before an attack hit, so we left early and came home. It hit full on when I was getting into the car in the parking lot and I was down for the rest of the day; it lasted over 8 hours. That's not saying that I was paralyzed for 8 hours but was unable to operate on my own, speak much or do anything. I see how it can be confusing when I say an attack lasted for "X" hours, when what I mean is that the first part of the attack, the violent or paralytic part, lasts up to 25 minutes or so, depending on how long it takes to get the potassium in me, and then the second part of the attack which is when I can't move much due to lack of strength or pain and my body remains down.

I did have another hit today after my aunt took me to Kaiser labs to get some labs done before tomorrow's doc appointment with my primary. Interesting is that my potassium was at 4.5 but my phosphorus was reasonably elevated. Normally, I hurt more with elevated phosphorus than I due with elevated potassium. Low potassium, however, will create great pain in nano-seconds within me and that hurts for a long time, typically.
I'm quite surprised that I was able to get up and walk around this evening after the hit this afternoon, but I'll not complain as much as I don't understand...if that makes any sense.

I hate this weather! I hate the heat up here! I'm not ready for summer and wish we could just "skip it" this year; that would make me very happy, indeed.

Prayers for tomorrow's visit to be attack-free and productive.

peace

Saturday, April 18, 2009

3 Days Briefly

I'm going to be less conversational in this post just because I want to get the info in, but don't want to spend long typing, so here are the bullets:

  • Thursday:
    • Stayed down and low key for the day
    • No attacks or crashes
    • CC & I Went to see Jeff Dunham at the Arco Arena; our dear friends, Craig and Beth Fetter, joined us for the evening and we had a fun time together.
    • Blood sugar is still running consistently high (mid to upper 200s)
    • Blood pressure is averaging high as well but not dangerously so: 140's to 180's over 90's to 107
  • Friday:
    • CC's mom, Nana, passed away in the earlier morning hours after several years battling Multiple Myloma Cancer.  All four of her kids (CC, Chris, Pam and Kim) are doing as well as should be expected.  I am saddened to lose her here, but am excited for her to finally be with Jesus as well as Pa (her husband who passed away several years ago).  We know, for a fact, that she is no longer in the terrible, relentless pain now that she is with Him and I am blessed to the core that God would consider sharing her with us for these last 6 years, specifically.  I love you, Nana and I miss you.
    • Attack in the afternoon.  Took me out through night time.
    • Blood sugar is still running consistently high (mid to upper 200s)
    • Blood pressure is averaging high as well but not dangerously so: 140's to 180's over 90's to 107
  • Saturday:
    • Woke up early this morning with much pain, especially in my right arm and shoulder.  This lasted through the whole day, even until now...(it's 11:42 PM as I type)
    • Went to see Joshua's gymnastics class and it was cool to see him working on the exercises and moves.  I was, however, an angry papa bear when I watched his coach and "assistant" coach become and remain disconnected from hands on training of the 4 kids in his class as well as the youthful, arrogant, demeaning attitude of the assistant coach who I think needs a little "parental-consultation" from me; I wouldn't need long...
    • Got a call from my bro, Scott Rose (in North Dakota), which completely made my day and weekend!  He even has a webcam that I was able to view while talking to him for the latter part of the phone call.  I miss him very, very much and seeing him gave me a real boost (even though he's lost weight and weighs way less than me [jerk] :o)).  Without question, the best music I've ever written and the music I am MOST proud of (spiritually and intellectually)was written and even performed with Scott.  I'm a blessed guy to be able and allowed to call him my friend.  May God allow us to write some more together.
    • Ok, I made a fruit smoothie (large)
    • Played some Xbox with Joshy (got stressed from my character getting killed so much...)
    • Had an attack because I made the large fruit smoothie and got X-stressed...my new term.  :-)
    • 3 or 4 MAJOR sweating bouts (1 just before the attack and 2 or 3 while in the attack) to the extent that sweat was rolling into my eyes and down into my ears (I was reclined in the black Lay-Z-Boy) to which I could do nothing but bear it out...not fun.
    • Would like to say that the hot weather SUCKS!!!

So there it is.  Church will be tomorrow morning and my hope and prayer is for no attack tomorrow and a miraculous sparing of logical and routine soreness in the morning and for the day.

g'nite

Wednesday, April 15, 2009

Before Thursday

Today contained no hits or crashes, though it ended with escalated pain throughout, so that's a drag. For the most part, today was uneventful and quiet, at least until the kids came home from school (we watch 2 additional kids from after school until about 5:30).

Foods were pretty simple:

Breakfast: bowl of mixed yogurt

Lunch: medium-sized bowl of rototini (sp?) pasta with CC's meat sauce (reduced sodium)

Snack: 1 large glass of Berry-Cherry Smoothie (110 mg sodium & 42 g carbs)

Dinner: Again, a medium-sized bowl of rototini (sp?) pasta with CC's meat sauce (reduced sodium)

Drinks: 4 bottles of water and no soda

We are planning to buy a digital scale so we can measure out the different necessary portions of foods and such.

That's it for now-

peace

Tuesday, April 14, 2009

Tuesday Night's Addendum

I'm feeling that I must write out my immediate thoughts regarding all the information now being made known about the rescue of the Captain from the Maersk Alabama, as well as the whole pirate movement being currently recognized and publicized. I'm including two different reports (in their entirety); one focused on the event itself and the second focused on how the hijacking ended. If you go to CNN's website, you can look up both of these stories with little searching.

Here is the first story from CNN tonight:

(CNN) -- The Liberty Sun, a U.S.-flagged cargo ship bound for Mombasa, Kenya, was attacked Tuesday by Somali pirates, according to a NATO source with direct knowledge of the matter.

Pirates attacked The Liberty Sun, a U.S.-flagged cargo ship, but were unable to board.

"The pirates fired rocket-propelled grenades and automatic weapons at the vessel, which sustained damage," said a statement from New York-based Liberty Maritime Corporation, which owns the vessel.

The ship was carrying U.S. food aid for African nations, the statement said.

The pirates never made it onto the ship and the vessel is now being escorted by a coalition ship, still bound for Mombasa, officials said.

Two senior defense officials said the Liberty Sun was being escorted by the guided missile destroyer USS Bainbridge. It is the ship carrying Richard Phillips, the captain of the container ship Maersk Alabama, which was hijacked last week. Phillips spent days as a hostage of the pirates before being rescued Sunday.

Katy Urbik of Wheaton, Illinois, said her son, Thomas, was aboard the Liberty Sun at the time of the attack. She shared the e-mails he sent as the ship came under fire.

"We are under attack by pirates, we are being hit by rockets. Also bullets," said one e-mail sent Tuesday afternoon. "We are barricaded in the engine room and so far no one is hurt. [A] rocket penetrated the bulkhead but the hole is small. Small fire, too, but put out.

"Navy is on the way and helos and ships are coming. I'll try to send you another message soon. [G]ot to go now. I love you mom and dad and all my brothers and family."

"My heart stopped after I realized there wasn't going to be a 'just kidding' after his comment," Katy Urbik said.

About 1½ hours later, Thomas Urbik sent another e-mail to his mother, which said, "The navy has showed up in full force and we are now under military escort ... all is well. I love you all and thank you for the prayers."

In an e-mail only hours before the attack, Urbik's son tried to assure his mother that his crew was safe and taking precautions.

"Don't worry too much. I am fine and we are being well monitored by the U.S. Navy, who is demanding we send them a report every six hours on our position and status," Thomas Ubrik's e-mail said. He added, "We in fact are going to be the second American ship to arrive into Mombasa after the Maersk Alabama. It should be interesting to say the least. ... We have had several drills to prepare ourselves to secure ourselves in the engine room. [W]e can do it pretty quick by now."

The company said the ship had dropped off food aid last week at a Sudanese port and the ship was going around the Horn of Africa to reach Kenya when it came under attack. However, the exact location of the attack remained unclear.

Earlier Tuesday, pirates off the coast of Somalia seized two freighters, proving they remain a force to contend with just days after the U.S. Navy dramatically rescued an American captain held by other pirates.

First, pirates in the Gulf of Aden on Tuesday hijacked the MV Irene EM, a 35,000-ton Greek-owned bulk carrier, according to a NATO spokesman and the European Union's Maritime Security Center.

The crew of the Greek carrier was thought to be unhurt and ships have been warned to stay clear of the area for fear of further attack, the Security Center said.

Later Tuesday, pirates on four skiffs seized the 5,000-ton MV Sea Horse, a Lebanese-owned and Togo-flagged vessel, said Cmdr. Chris Davies of NATO's Maritime Component Command Headquarters in Northwood, England.

Details about the ship and its crew weren't immediately available.

NATO has an ongoing anti-piracy mission off Somalia called Operation Allied Protector. The mission involves four ships covering more than a million square miles, Davies said.

A U.S.-led international naval task force, Combined Task Force-151, is also patrolling in the region.

Tuesday's hijackings came two days after sharpshooters from the U.S. Navy SEALs killed three pirates who had been holding Phillips hostage on the water for days.

Phillips had offered himself as a hostage when pirates attacked the Alabama on Wednesday, officials said. The ship had been on its way to deliver aid to Mombasa, Kenya.

A fourth pirate had been aboard Bainbridge when the shootings occurred and was taken into custody. Video Watch the tough tactics the Navy uses »

The incident follows four freighters being seized over the past two days by pirates off the Somalian coast, proving they remain a force to contend with.

Pirates on Monday hijacked two Egyptian fishing boats carrying a total of between 18 and 24 people, the Egyptian Information Ministry told CNN.

The Egyptian Foreign Ministry is working to end the hijacking, the ministry said.

Egyptian boats are known to use Somali waters illegally for fishing, taking advantage of the lawless state of the country and the lack of enforcement of its maritime boundaries.

Those who have tracked pirate activity in Somalia say it started in the 1980s, when the pirates claimed they were trying to stop the rampant illegal fishing and dumping that continues to this day off the Somali coast.

Piracy accelerated after the fall of the Somali government in the early 1990s and began to flourish after shipping companies started paying ransoms. Those payments started out being in the tens of thousands of dollars and have since climbed into the millions.

Some experts say companies are simply making the problem worse by paying the pirates.

~~~~~~~~~~~~~~

Here is the second CNN report regarding how the hijacking ended:

(CNN) -- In the end, it was a single moment that brought the hostage crisis to its dramatic finish.

Three gunshots. All three fatal. Fired in the dark by three specially trained U.S. Navy SEALs as the pirates' boat rocked in the water off Somalia.

"Phenomenal shots -- 75 feet away," said Navy Vice Adm. Bill Gortney, who oversees the region.

A senior defense official said each was a shot to the head.

Gortney, in an interview Monday with CNN's "American Morning," described critical steps that led to the rescue of U.S. Capt. Richard Phillips, who was taken by pirates after they boarded his merchant ship, the Maersk Alabama, east of Somalia on Wednesday.

Four pirates had been holding Phillips in a small lifeboat, which had run out of fuel. "One of their pirates had left the lifeboat, needed medical attention and jumped onto one of our inflatable boats," Gortney said.

Gortney told CNN's Barbara Starr that the USS Bainbridge rammed the lifeboat Saturday to keep it from trying to return to the Somalian shore about 20 miles away.

"At one point, actually, the two vessels collided" as the captain of the Bainbridge tried to hold off the lifeboat, Gortney said.

Gortney, in the "American Morning" interview, said one of the pirates needed medical attention and "jumped onto one of our inflatable boats."

The pirate's need for medical help was a credit to the Maersk's crew. When the pirates boarded their vessel, a tussle ensued, during which one of the crewmen stabbed the pirate in the hand. Four days later, the pirate's departure from the lifeboat to accept U.S. medical help -- and try to negotiate the captive's release -- left only three for the U.S. snipers to keep their eyes on.

The three were tired, Gortney said. "The sea state was picking up. They agreed for us to tow them into little better waters as the ship was bouncing around. It was very tense."

The on-scene U.S. commander of the Bainbridge, which had come to try to negotiate the captain's release, could see the three remaining pirates "were very, very intense. One of them held his AK-47 in the back of the captain. We were always concerned about the imminent danger to the captain."

The pirates had repeatedly threatened to kill Phillips, Gortney said.

A Navy SEAL team had parachuted in and taken up positions on the Bainbridge's back deck.

The military had orders from President Obama authorizing lethal force if there was imminent danger.

"At one point, as uncomfortable as the pirates were, they exposed themselves where there was an opportunity," Gortney said.

He gave details of that "exposure" at a news conference Sunday. He said two of the pirates had their heads and shoulders exposed, while the third was visible in the boat's pilot house, through a window.

"The on-scene commander saw that one of the pirates still held that AK-47, was very, very concerned for the captain's life -- and he ordered the shots to be taken," Gortney said Monday.

Even with the small boat "moving up and down a couple of feet," the SEALs hit their targets. "Remarkable marksmanship," Gortney said.

The moment came at 7:19 p.m. (12:19 p.m. ET) Sunday -- after sundown, military officials say.

In the minutes after, a special operations team shimmied along the tow rope to the lifeboat, confirmed that three pirates had been killed and took Phillips back to the Navy ships that had gathered nearby.

The fourth pirate was taken into custody.

"These guys [the SEALs] are very well trained, they have a lot of experience and there has to be a lot of communication between the shooters and the people making the decision that they all three had shots, that they could make their shots successfully," retired U.S. Navy SEAL Dick Couch said on "American Morning."

He added, "Credit that on-scene commander with making a timely decision."

Hijacking and its close "relative", kidnapping, hold certain dark places in my view of humanity. On the one hand, the hijackers were armed with very deadly AK47s and made it abundantly clear that they were going to control the situation with their use of deadly force and even to the point of killing a person to get what they wanted. That they were killed instantly is some kind of "gift" to them, considering what could have happened to them had the crew been able to overpower them and regain control of the ship, let alone what would have happened to them had they been given over to the families of those they or their fellow pirates had slain previously on other hijackings; they would not have died quickly, I would expect. Now, on the other side if this, you have the reality that none of the four hijackers was older than 19, so we're talking about kids-young adults. This whole scenario grieves me all the more. Not just because young lives were ended abruptly, but more so because those three SEALs and their superiors have to cope with taking the lives of these "kids", to which they had no real choice in the matter. As far as I am concerned, these "kids" weren't acting like kids at all, but were acting as they have been taught to act in order to get what they want, from whoever they wanted it from. I expect their *youth* ended quite some time ago, long before getting into a speedboat with an automatic rifle. This will sound harsh, I know, but I'm glad that each of the SEALS hit their marks in their only shot because that meant immediate death versus a possible critical wound that would have possibly have had them bleed out, slowly and very painfully and even more likely, killing the captain before they died themselves. The pirates had created this situation as well as its ending. Their actions became their convictions and their deaths were their own judgement, if that makes sense.

Make absolutely NO mistake; I am immensely proud of of our military and even especially our SEALs and these three SEAL snipers performed a task that no one wants to have to do, yet they train for it every day of every year of their service. The burden on our military is incredible and yet young people are always enlisting to serve, showing that they are willing to step into harms way to protect the rest of us, whether here on the US soil, foreign soil or out at sea.

I don't know if I will keep this post on the blog or not because my emotions are fueling my perspective on the matter, but I knew I needed to, at the least, write them out and see them in front of me. the question, come tomorrow, is whether or not I need my opinions on this to be public or not. I'll post it tonight and then decide tomorrow whether or not it will remain.

Peace at 11:33 PM-

Tuesday: Symptoms Shared

I've been thinking of what my symptoms look like to the person with me as well as what they are in terms of how I feel when it is happening, so here are some of my conclusions; it is a work in progress, you understand...:

  • Feeling light-headed or confused
  • Numbness or tingling in my hands, lips , fingers or hands
  • Sharp shoulder pain, above the joint, in the heart of the shoulder muscle
  • Heavy fatigue
  • Chest pressure (not pain, necessarily, but chest wall pressure from the muscles around the ribs and upper body constricting
  • Sweating all over; from top of the head to the feet
  • Lack of physical independent stability
  • Locking jaw
  • Closed eyes
  • Unable to move parts of the body or even the whole body
  • Being rigid and locked up, muscles tight
  • Being completely limp, like a rag doll
  • Localized spasms to seizure-like spasms
  • Unable to get up from a sitting or lying down position
  • Unable to answer if spoken to
  • Neck drops (where, all of a sudden, your head drops down, chin to chest, without your control in the moment)

Well, that’s all I can think of at the moment, but I’ve dealt with each of these and do deal with these at different points each week. We’ve minimized the number of attacks to some degree by changing my diet and always having liquid potassium with me wherever I am at any point in time. I also take an Ativan at the onset of spasm symptoms with chest pressure or pain, as well as some Percocet to get a jump-start on the soon following muscle pain.

I added this into a discussion board on Facebook and thought that it might be enlightening to some who read this blog from time to time.

btw: today's PT appt came and went without incident but I'm still definitely recovering from the previous hits; feeling physically beaten up and sore, along with tired and weak. Profuse sweating still occurs to me on a daily basis but after each episode of the sweats, I just have to wait and see if it's the "prelude" or just a small "anthem" in itself (like now...).

Keep on, keepin' on.

Monday, April 13, 2009

And Then There Was Monday

...and a reasonable Monday it has been.  No hard crash or major attack to speak of, but a quick, smaller hit that literally took my feet/legs out from under me around 6:ish or so.  Once again, who's there to catch me?  CC.  As she had passed by me and asked if I was alright, and just as I was able to say "no", she caught an arm and Missy came around and grabbed the other while Joshy pulled a chair to underneath me and down I went.  This time I did not lose my vision but did have the brain-fog which is common with potassium changes, drops in particular.  The got the liquid K+ into me very quickly because hardly any other symptoms followed suit.  A matter of minutes later I could feel my body's muscles all stiffening up and becoming sore and angry.  My jaw seems to be another localized point of susceptibility during the attacks now and becomes hard to move and open, plus, it just plain ol' hurts.

While I was doing my usual pondering and self-psychoanalyzing about "why this hit and like this" and she reminded me that today has been a good day in many respects, but it has been a very emotional day as well.  It's not appropriate for me to go into today's emotional details, but in a general sense, here are some of today's realities: a friend is suffering and feeling alone, another is coming to the end of a very long journey, another friend and I have reconnected after quite some time, and also, we have some life changes ahead of us that will require intense attention shortly.  No one thing from this list triggered the hit, but we feel that it was the combination of intensities that shoved the adrenalin into gear, causing a quick shift in the electrolytes and either pulling K+ out of the muscles or shoving it in (I can't really remember right now the order in which they all go, but they are all cellular dominoes that fall when tapped and they each effect the next.  Wow; I'm wordy, huh?

One of the specifics that I can share from today is that I learned that there will be another HKPP Conference this year in October in Orlando, Florida.  Of even more significance, there will be an internationally known and recognized doctor who treats HKPP patients speaking at the conference and he will be providing free genetic testing for those who can attend.  Even now, as I reread what I just wrote, I sit here and wonder how in the world we could pull it off to be able to go, participate and then, make it back unscathed to a significant degree.  We had planned to go to the 2007 conference but wisely realized that my condition was much too unstable to make the flight and conference work and worthwhile, especially considering the costs at that time.  I guess I just felt that I should share that because, well, it's going to take immense prayer and discernment to know whether or not I, and my family, are supposed to go and then more of the same to figure out how we could even afford to go, etc.  Let me also say that I DO know that God does provide and His funds are limitless, but I also believe that if we are not prayerfully seeking His face and His direction and listening for His voice amidst the sounds of our daily life, we can, with good and warm hearted intentions, mistakenly insert our own voice or agenda while waiting on His.

I've given much in the way of prayerful intercession needs and I beseech you to please pray for me, for us and for those alluded to, who are in need of Him, even now.

I don't want to close this out without conveying this; Gary, I love you brother and I miss you. But I'm looking forward to staying connected with you now; this disease and its attacks have truly opened my heart and my eyes to my family and my friendships in that they are more valuable to me now than they have ever been and than I can really comprehend. You are precious to me, Gary.  Thank you for calling me friend.  I'm humbled.

Foods today:

  • Breakfast: several pieces of grilled steak, marinated w/o salt
  • Lunch: a chopped steak salad with Romaine lettuce, garbanzo  & beans (reduced salt), and TJ's low salt salad dressing.  Included no salt corn tortilla chips from Chili's with some sour cream and 1/2 a tablespoon of Pace mild salsa.
  • Snacks: 2 Cutie oranges
  • Evening: a slice of CC's banana bread
  • Drinks: 4 or 5 16.9 oz bottles of water [No sodas]

Ok, now it's time to be done.

peace-

Sunday, April 12, 2009

Easter Sunday

We got up in time to make it to church this morning, though we did not get there prior to the service beginning; a weekly challenge of ours that we seem to fail nearly every time, *sigh*.  I took a few pics and posted them here (below) because I was struck but the dynamic lighting of the service, yet, if I am honest, I was clearly distracted by it as well, which is counter-productive in terms of a worship service or setting.  Indeed, at 11:15 we had a full orchestra and full choir as well as the Doug Reid Band leading in worship.  I felt that this morning was more-so directed at newcomers and the Holiday attendees rather than the established family.  It's certainly worth noting that it was a full house for that service.

After church we eventually made it out of the parking lot and back to the freeway and then we went to Chili's for our Easter Lunch...sounds kind of anti-climactic, but we did have lunch together and that was more-so what Easter lunch is about in my opinion.  On the one hand, it would be really neat to go someplace fancy and have an expensive high quality tasting lunch with as many family as we could gather, but then also on the other hand, it shouldn't matter where you got to eat as long as you are with your family.  So, we were a little over-dressed for Chili's, but we felt good to be out, eating lunch together.

Worthy of noting here in my blog is a realization that I came-to within the past couple weeks; when the disease picked up speed a few years ago, I fought hard to remain in control of my routine, my job, my responsibilities, my friendships and relationships and my life and self esteem.  I fought so hard that I lost perspective on each of those things because my focus during the fighting was always on my symptoms and attacks and hardly on living and making the best of me in the midst of the circumstances.  Now, in sharing this and realizing this, I am not beating myself up about it or condemning myself over it, but recognizing it so I can own it and keep going.  I realize as well that this may just be for me and not something others might understand and that's perfectly cool too because I know that I am both the author of this and the reader of it as well.  *[heavy duty sweats just came and went in a matter of a few minutes.  bleh.]  Specifically, I realized that the main reason I backed way off from trying to maintain my foothold within the Audio and Media Production fields was and is that I feared being wrong.  I feared that my memory would fail me in crucial moments and in important conversations and I would feel ashamed of my memory losses and current inability to concentrate and successfully focus.  I think much of it is ego-based and vanity while another part of that soul within me who wants to please and serve yet now feels that I may not have or remember the words to share that someone may need to hear in a moment of exchange.  {more head and neck drops while I'm trying to focus my thoughts and write this out.  Grrrr.]  I shared this with CC over lunch a little bit ago and she encouraged me to realize that I have more to give without having to drive around to do it and that got me thinking about this blog and my Facebook participation and how I need to keep myself involved for a variety of good and healthy reasons. [ok, it's getting harder and harder to keep typing and thinking now]  I need to stop and rest, I've run out of *fuel*.

Hi. this is Missy, Wade's daughter. He is in bed right now, resting after a unfortunate little crash with body stuff. Soo....... yeah. he will be up and moving tomorrow (I think). Ok. Bye!

Easter 2009

Easter 2009

Easter 2009

Easter 2009

Easter Sunday at Capital Christian Center, 2009; full choir, band and orchestra...and us.
May God bless us all in spite of ourselves.
He has risen, He has risen indeed.

Saturday, April 11, 2009

Saturday Re-cap

Today began unremarkably, health-wise anyway; CC took Joshy to his gymnastics class so I slept until 9:30 AM or so, and then shortly after 10:00 AM, Missy came down stairs and began her day as well.  She worked on some of her morning responsibilities while I ate some breakfast (1 and a half eggs with some cheese and a piece of potato bread toast with 1/2 a tablespoon of blackberry spread.  The morning was really, pretty much uneventful for the most part.  After eating, I realized that I was feeling nauseous and weak.  I wasn't sweating though.  Anyway, by the time CC came back home with Joshy, I was feeling very anxious and somewhat panicky that my chest was constricting, deep breaths weren't an option and my legs and hips were very week and undependable.  She got me some meds to help shut it all down but it took 2 doses to manage it, and even then I was still very aware that *something* was not level within me.  Add to this that my blood sugar has been remaining in the 180 - 275 range for the bast several days and we have some idea of a culprit.  Also, my bp has been running high again (150-180/90-101) without any clear cause.

Today was a down day and I feel like i missed out on time with my family and even my dog.  This is when the disease is at its most effective cerebrally in that I become bummed out and even depressed with this kind of scenario plays out for an extended period of time. Prayers for good sleep tonight and for the muscles to relax and mend and for a remarkable difference in my soreness and strength (in a positive way) come tomorrow.

Maroon 5's "Wake Up Call" is impressively put together, musically.  Pass on the video, but find the tune and listen to some nice, tight music that makes your neck work.  :o)

Time for bed-

peace

A Movie Clip

 

Ok, so I'm supposed to be going to bed, but I just had to check out this other feature in Windows Live Writer which will allow me to post a video (this is not my dad even though the title says it is...) in my blog as well!!  You must watch the whole video, it's only 9 minutes but you'll end up laughing till it hurts, more than likely...
This is very cool! Expect more video clips from now on. :o)

Ok, I done.

Saturday Morning :04

 

So it's 12:04 AM and I'm still trying to get my mind back after watching "Seven Pounds" tonight with CC.  Impressive and unique movie that is also very intense and emotional; that's all I should say in case you haven't seen it but think you might check it out.  My remedy?  Watching some of WWE Friday Night Smackdown (Professional Wrestling).  Works for me.  I'm not back yet, but it is working.  I decided to post something after tucking the kids into bed and then checking my email one more time before staying down for the night.  I saw a link that I was not familiar with, called "Blog This"; it is in my Internet Explorer tool bar so I decided to check it out (later hours often brings out curiosity) and it opened a feature, Windows Live Writer" which will apparently post directly to my existing blog, so, here I am.  It appears that I might have much more in the way of text options if I use this to create the post; we'll see.

No hits since Tuesday, praise God alone.  Both attacks were pretty un-fun, so to speak, but they could certainly have been much worse, so I'm still thankful for not experiencing a deeper level of pain and recovery.  Sometimes it's not so easy to be unafraid of the next day's inclusions, in that, I don't know what tomorrow will bring, i.e. an attack or crash or stiffness or malaise or anything else I do not want to experience, but I know that I have to face tomorrow full on and not anticipate suffering.  I need to expect life and touch the warmth of the love of my wife and children; that I must do every day, whether or not I feel good or even indifferent.

Another thing I want to include is that I don't know how many Facebook friends read this blog, but for those that do, I want to share that I SO appreciate your Wall postings and notes, so much.  I wish that I would feel like being more communicative and be on FB more often, but when I'm not feeling as well as I want to, I tend to refrain from interactions and connections which includes being on FB as well as even posting here in the blog.  Add to that, that my eyes take much more effort to read and see now than before, makes it very difficult to read, let alone write.  That's not so much me whining about old age eye sight issues or even diabetic vision issues because, according to the folks at Kaiser, my eyes are functioning as they are supposed to in regards to my age and diabetic screenings.  Of the more challenging muscles that have routinely been the first to "go" when the attacks and crashes hit, are my eyelids and my ability to keep them open as well as focus and control my eyes.  Even now, as I type these words, it takes several blinks per word or few words, and I have to work to keep them focused and oriented simply because I'm tired and those muscles have been hit over and over again.  I feel like I'm whining again...well, I hope you understand my heart in what I am trying to say anyway.  I'm going to make a more concerted effort to stay in communications on FB, but if, or better, when I fail, I hope you will understand.

I've been writing for nearly an hour now, so it really is time to be getting to bed even though I have a number of things I want to share here.  Another day has begun and I know I need to rest in order to take advantage of its dawning.  Peace.

Wednesday, April 08, 2009

Wednesday Night Quick

Wednesday, April 8, 2009

Another quicker post than not; today was attack-free but yesterday late morning, I took a hit while on the table at PT and the day before (Monday) I got hit in the evening. Today just plain-old hurt, sums it up.
We've been monitoring my blood sugar as well as my blood pressure and both have been elevated, leading me to believe that my system is much more fragile than it was weeks ago, and likely my potassium levels are all over the map since my blood sugar and bp are elevated.

Tomorrow is PT again...I'm going to go very easy this time on the stretching but normal on the muscle massage, if Mark is cool with it. It's such a two-edged sword, exercise and muscle manipulation (like massage), in that the muscles need to be flexed and moved in order to keep the exchange of electrolytes and oxygen flowing in and out of them, but move them too much or too suddenly and they react with a cramp or an attack. There is a definite invisible line that you know you have crossed but cannot see beforehand, that must be held in order to prevent more damage following an attack.

The venture to the mall on Monday went well but I ended up exhausted afterwards and then that night I got hit. It could have been because of the level of exertion or it could have been just the fragile levels getting out of whack.

I do want to note that it was my Aunt and Uncle who came to help me while I was at PT on Tuesday and they got me out of PT and home. They have been selfless in their care of me and of us as a family; always offering to help in way they can and always being in attendance of our family gatherings and kids events (when schedules would permit) and I don't think there has been but maybe one time that I was in an ER up here, that they weren't there with me or CC to support and help in any way they could (and we're talking about, between 15 and 20 ER visits in the past three years, I think).

Please be praying for tomorrow's PT appt. I don't want another hit again. My body needs more time to recover from the last two and I know I need Mark's help to work the muscles recently damaged from the last two hits.

Lastly, I had been letting my hair grow out a bit from shaving, to see how it would look coming in and what areas on my scalp would be visually problematic, from my perspective. What I saw frustrated me more and more, though I know that I have to be in it for the "long haul", so to speak, and not get discouraged by what I see in the process. The problem was that, every time I looked in a mirror, I saw a "crippled" old man who looked beaten and lost. Sounds dramatic, I know, but it IS what I saw and I hated seeing it. So, on the weekend, I suddenly remembered what had given me strength in attitude when I was recovering from my back surgeries and when I was being treated like a drug-user/junkie; I remembered a pro-wrestler named Stone Cold Steve Austin, whose "gimmick and personality was that of a alley-fighter, take no names-just kick butt, shaved-headed tough s.o.b. (It also happened that I resembled him at a distance). I adopted his DTA attitude (DTA=Don't Trust Anybody) and decided that I would not be a victim any longer and that I would not be taken advantage of anymore. Emotionally, I would hit first and would stand up and be counted at the first sign of conflict. So, with all of those memories coming back to me in an instant, I knew I needed to re-adopt a fighter's attitude and choose not to lie down when I get hit or crash, but fight and be proud of and respect what and who I see in the mirror. For me, that meant shaving my head again and trimming my beard/goatee so that I would resemble someone that I would not want to challenge at a glance. To me, it's about attitude and perspective and not allowing a bully like HKPP or Hyperaldosteronism to beat me on all four fronts (physically, emotionally, spiritually and intellectually/cerebrally) at the same time. Pro wrestlers always play to the audience, always wrestle or fight even when injured and they never stop pursuing their goal to achieve whatever belt or championship they are going after. In my case, I am my own audience and need to “play” in such a way that I feel respectable and know that I believe in myself to beat whatever I’m fighting. Due to the diseases, I have no choice but to fight while injured which, in fact, means to fighter more definitely and more intelligently with knowledge and wisdom as well as perseverance and determination. I’m not fighting for a belt or a title or championship; I’m fighting for my life. I’m fighting for my family. I’m fighting for my dignity against a disease that chips away at my view of myself with each and every single hit and crash I suffer.
Enough said for now.

More later-

In This Body: Living with HKPP through Faith and Love of family & community with Wade Odum This was recorded on March 19, 2024 On today...